Prepping for a Procedure

Prepping for a Procedure

Whether it’s your kiddo’s transplant surgery, or something as low-key as getting ear tubes, your child undergoing a procedure can be pretty frightening. Luckily, there are several things you can do to ease your worries and those of your transplant warrior. I’ve found that there are three main keys to success when your warrior needs an operation: education, communication, and preparation. Education. My number one piece of advice is to learn as much as you can about the required procedure. Knowledge is power. When you are armed with information, you can know what to expect, and fewer unknowns means fewer

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Clinic Bear

N is getting to the age where he is understanding a lot more of his surroundings, and consequently he’s now recognizing the EKG and Echo rooms. This is starting to create a negative clinic association for him, and I’m afraid it’ll end up like lab draws, where he cries at the sight of an alcohol wipe. He’s not quite to the age where Super N can teach him what’s going on, but he still understands that something he doesn’t like is about to happen. So I started trying to figure out how to show him what’s going on. I don’t

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Trust the Magic of New Beginnings

A couple of weeks ago we had our one year clinic visit. N is, thankfully, doing incredibly well! We’ve had a couple of bumps in our road up to this point, but it has, ultimately, been an amazing ride. We were given the word that we can space out our visits from every four weeks to every three months. When I heard this, I was overjoyed! For a moment… That joy very quickly turned to nausea and intense discomfort. This must have shown on my face, because our nurse quickly assured me that we could come back to them prior to that

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Rewards

We’ve had lots of family discussions about rewarding good behavior in clinic to reinforce the positive experience surrounding the appointment. The problem is, nowadays reward systems are under a lot of scrutiny from “the experts.” You can’t reward your kids with food, especially sweet treats, because that will perpetuate tendencies of eating your emotions and seeking sugar for validation, and that’s how you get obesity and diabetes. You can’t reward your kids with toys, because that’s how they become entitled, dysfunctional members of society who expect things to be handed to them on a silver platter. So what the heck

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Proper Planning – The Dress Rehearsal

One way to set yourself up for a successful clinic visit is to prepare for the actual appointment. All through my childhood, mom and dad taught me the 5Ps: Proper Planning Prevents Poor Performance. Remember our motto, Repetitio Mater Studiorum Est? Drill this into your brain. If you plan and prepare properly, you have a much better chance of having a much better time. So, you can either plan on your child losing his or her ever-loving mind, and then mentally gear yourself up for your own imminent breakdown. Or you can prepare your child for what they are about to

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Setting Up for Success

For those of you who may still be waiting for an organ donor or who are in recovery and have not yet gone to clinic, I have some tricks of the trade for you. I don’t know what clinic is like for other organ recipients, but for us, it includes lab draws to determine his FK levels and basic health status, an EKG, an Echo, and a wellness check with the transplant staff. This can take a while and be very uncomfortable, especially for little ones. I know for N, after being stuck with a needle and having blood drawn,

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