When Toddlers and Meds Don’t Mix

When Toddlers and Meds Don’t Mix

Sometimes it can be a battle of wills when giving smaller children medication. But it doesn’t have to end in both parties breaking down and dissolving into tears when all is said and done. There are several ways you can get your little one to take their medicine. First and foremost, we have always made taking meds a HUGE deal for N. From the onset, whenever he took them successfully we would clap and cheer and say “yummy!” We even started calling them his yummies. Now, he opens right up like a little bird baby at the sight of a

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Semper Paratus

The thing about having a transplant child is that you must always be ready. For anything. Without so much as a moment’s notice, you could get called from work to pick them up for any kind of illness (isn’t immune suppression a peach?). Because of this, I’ve found that it helps to be ready for any situation in which N would need medication. I pretty much always have Tylenol on me, in case he spikes a fever, and you’d be hard-pressed to catch me without his Tacrolimus. If we are going out anywhere and there is even a snowball’s chance in Hades

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When to Loosen the Reins

How do you know when your child is responsible enough to handle their own medications? How do we know they will actually take them, and not just tell us they did while really skipping doses? I’ve seen posts on transplant Facebook pages where this exact thing has happened. One mom said that after her teenage son received his transplant, she kept track of his medications for a few years. Then she let him become responsible for them. She later realized that he had been missing doses. He became very ill and was soon thereafter diagnosed with rejection. When you do something

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Financial Assistance

Forgetting or intentionally skipping doses repeatedly can be catastrophic. Medication is the only thing between a transplant recipient and rejection, and honestly, it’s an extremely imperfect solution with no guarantee. It’s not an exact science, it’s ever-changing, and it’s no cure-all. The ideal option would be an organ grown from the patient’s own stem cells, which does seem to be a viable option in the future. However, right now we have to play the hand we’re dealt. It is imperative that your child receives his or her medication in the proper dose at the correct time. If you cannot afford

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Managing the Chaos

We were discharged with nine different medications, some of which had three doses a day, some were twice a day, and some were only once a day. Some were being weaned, so the doses were continually changing. We just about drove ourselves bonkers trying to keep track of which ones were due when, and which ones we had given each day. Our transplant nurse gave us a spreadsheet that we put in a plastic page protector. It had rows for the medication type and dose and columns for the day and time it had to be given. Below is a

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