Semper Paratus

Semper Paratus

The thing about having a transplant child is that you must always be ready. For anything. Without so much as a moment’s notice, you could get called from work to pick them up for any kind of illness (isn’t immune suppression a peach?). Because of this, I’ve found that it helps to be ready for any situation in which N would need medication. I pretty much always have Tylenol on me, in case he spikes a fever, and you’d be hard-pressed to catch me without his Tacrolimus. If we are going out anywhere and there is even a snowball’s chance in Hades

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Daycare

Daycare enrollment for us was quite the lengthy process. We finally got N enrolled in a center very near where we work, but they have an exceptionally strict vaccination policy. Strict as in: no vaccines, no admittance. And I love that, because I know that my N will be safe if all of the other students have had their shots. However, we’ve only gotten the vaccines that contain dead viruses. Since he is immune suppressed and can’t get live vaccines, that means he does not qualify as having met their policy. We had to pursue a waiver to get him considered

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Spreadsheets are Your Friend

Piece of advice: keep all of your bills and the receipts or credit card confirmation codes when you pay them. My husband and I set up an Excel spreadsheet, and we organize every bill by date, location of services, date paid, confirmation of payment, and amount billed. We also keep track of medical mileage, and we keep all of our prescription receipts. These are logged in our spreadsheet as well. Now, when we go to do our taxes, everything is already itemized. While frantically trying to survive my son’s hospital stay, I didn’t have the presence of mind to think

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Apartment Hunting

If you’re looking for an apartment to stay in while you’re waiting for your child’s transplant or while waiting to go completely home, you can usually sign a caveated lease stating that you can break the lease at any time so long as you present to them a letter of dismissal from the transplant coordinator. Make sure you get this clause signed by the apartment manager before you sign your lease! This was a HUGE safety net for us, because otherwise, the complex only rented by the year. Yikes. Also, contact your insurance company about what they will reimburse. Many

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